All the bad things rolled in one episode for my 10th episode!
So yea what's good without the bad? Hosted on Acast. See acast.com/privacy for more information.
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18:42
We get to go to Disney?? what??
Talking about good things happening obviously :) I mean....vacation for a medical family? enjoy our info and our podcast? leave a review please! Hosted on Acast. See acast.com/privacy for more information.
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15:45
We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF
On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist. Hosted on Acast. See acast.com/privacy for more information.
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28:42
DC Leukodystrophy Research Trip Update(UBTF)
During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the opportunity to visit family members, including his grandparents (nono and yaya) and aunt. We also enjoyed attending a lively Greek festival together, immersing ourselves in the cultural experience. The trip was rounded off with a pleasant brunch shared with our relatives, combining both the pursuit of medical insights and cherished family moments in our nation's capital. Hosted on Acast. See acast.com/privacy for more information.
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29:30
Sick Policies and what's coming up
In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up Hosted on Acast. See acast.com/privacy for more information.
Über Double Rare: A Mother's Path With Two Rare Diseases
Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired by the courage, strength, and unwavering hope of this extraordinary duo as they navigate life's unexpected twists and turns together. Hosted on Acast. See acast.com/privacy for more information.
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